The belief that one is dead, an uncontrollable "alien" hand: these conditions wouldn't sound out of place in a horror movie. So you may be surprised to learn that they are just two of the thousands of very real and rare disorders that can have a devastating impact on people's lives.
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There are around 7,000 known types of rare diseases and disorders.

According to Global Genes - a leading rare disease patient advocacy organization - there are around 7,000 types of rare diseases and disorders, and more are being uncovered every day.

In the United States, a disease or disorder is considered rare if it affects fewer than 200,000 people in the country at any given time, and it is estimated that 1 in 10 Americans are living with such conditions.

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